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Feeding issues and Down syndrome
Have you been offered support with regards to overcoming your child’s feeding problems, or guidance as to how best to teach them how to feed and eat properly. Are you aware how important this aspect of...
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Empowered women informed choice
The most pressing topic within the Down syndrome community at the moment, is that of the NIPT (non invasive prenatal test) a new form of early detection screening. The advent of this new test brings...
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Sobbing on the bathroom floor
So there I was, a week and a bit before Christmas Day, lying on the bathroom floor sobbing. You may know this kind of gut wrenching sob, where your shoulders heave up and down and hot tears stream, not...
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Specialist multi-nutrient formulas and TNI for Trisomy 21
Talking about vitamins and minerals shouldn’t really have to come with a trigger warning but when it comes to specialised multi-nutrient formulas and TNI for the Down syndrome community, I feel that...
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Why the world needs people with Down syndrome
My neighbour rang me yesterday, to ask if I would sign for some medical oxygen she was having delivered for her home birth. Sure I said, no problem. Little did I know that the encounter with the “gas...
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Natural treatments for blocked and runny noses
A common problem for kids with Down syndrome is excessive congestion in the nose and throat. Many children suffer with runny noses of course, however children with Down syndrome are particularly...
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Improving your child’s appetite
Does your child have a poor appetite? If the answer is yes, then you are not alone. This problem appears to be rife in the Down syndrome community and obviously causes parents and children a great deal...
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Down syndrome online life
Much of the connection and communication in the Down syndrome community happens online. This in my view is both a blessing and at times a burden. The benefits are abundant, the opportunity to ask...
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Antibiotic vs Probiotic
It’s really frightening when your child has a fever and infection, especially so when they’re very young. The first port of call for parents who have a sick child is usually the GP and in urgent...
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Thyroid health and Down syndrome
Thyroid health is complicated and opinions regarding assessment and treatment differ considerably. One thing that is well recognised however, is that thyroid dysfunction, in particular clinical...
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When the truth derails your plans
I had to make a very difficult phone call to my sister last weekend. I needed to discuss with her the possibility that myself and my son Oliver, might not make it back to the UK in May for a visit. I...
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Surviving sleep deprivation
The other day I wandered down to my neighbours house with my son, as we wanted to see if her chickens had laid any eggs that we could have. I knocked on the door and she answered in her dressing gown...
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